This Sunday I attended a wonderful and moving memorial event for Judy Scott the user payments expert and campaigner. It was organised by her son Chris and held in Meanwhile Gardens a community run park in west London. I didn’t know that Judy was one of the small group of people that set up Meanwhile Gardens and established a work project there for people with mental health issues.
Swiss finishing school and mushroom foraging
As often happens at such events you find out that you only really knew about one part of someone’s life. With Judy I soon realised I there was quite a lot I didn’t know. I found out from other guests and speakers that Judy went to Swiss finishing school and was related to the architect that designed Battersea power station and the iconic red telephone box. I also learnt about her days as a radical feminist, a clothes designer, her breakdowns and periods of penury her passions for sea fishing and mushroom foraging and that her nickname was ‘JudyMan’. In this tribute I focus on the part of Judy’s life that I do know about her work around paying people on benefits which is a vital aspect of many co-production and participation projects.
Notional earnings
I really got to know Judy when was working for the Social Care Institute of Excellence (SCIE) and Judy had become the national expert in an arcane but vitally important area of benefits legislation called user payments. Basically, organisations like SCIE wanted to pay disabled people and people with mental health issues and cover their expenses to help shape social policy and services. But the benefits system prevented this. Lots of people were terrified of receiving any sort of payment as it could result in their benefits being stopped. There was a rule called notional earnings that meant that even if you refused any payment, you could still be treated as if you had been paid. In the past the payment of any expenses associated with attending a meeting could also be treated as earnings. We basically have Judy to thank for getting the Department of Work and Pensions to change those two rules.
Judy knew more
Judy knew more than anyone else about user payments and the benefits system. She knew more than the civil servants that created the system and wrote the legislation, she knew more than anyone who worked in job centres who were responsible for managing the system, she knew more than benefits experts at the citizen advice bureau who were supposed to be able to advise people about their rights. She knew more than the people who worked in the finance departments of local councils, NHS trusts and universities. She also knew more than the accountancy firms and lawyers that advised local councils, NHS trusts and universities.
Adventures in the House of Lords
My work with Judy was partly about making sure that people had simple accessible advice about the regulations. There were lots of loop holes and work arounds that Judy discovered and we made sure that this information was widely available. The other part of the work was more exciting – we campaigned to change the legislation. When I say we really it was Judy who put together a consortium of likeminded organisations who all chipped in to pay her to work as a consultant. Then Judy did the hard work of making connections and finding sympathetic politicians. Judy’s efforts led to many adventures. She had particular success in the House of Lords through her contact a disabled Lib Dem peer called Baroness Thomas of Winchester or Celia as she insisted, we call her. Our visits to the House of Lords became quite regular. Baroness Thomas was very helpful and got us in front of more and senior officials and politicians.
People reacted quite differently to Judy and her knowledge – some people were overjoyed that someone actually understood the system and could tell them what to do. But other people whose job it was to know about this stuff tended to get a little defensive. Especially when Judy knew the regulations and the legislation better than the people that wrote them and the people that had to job of enforcing them. I used to take a quiet pleasure in meetings watching people’s discomfort as Judy corrected them on some very detailed but nevertheless vital aspect of the welfare system. It was rather enjoyable to see a senior Department of Work and Pensions official’s blithe confidence fade away as it dawned on them that Judy knew more than them and that Baroness Thomas and I were better briefed than they were.
The Fleischman clause
I have many fond memories of working with Judy. Once she sent a me a copy of Hansard. It showed that the government had accepted what Judy called the Fleischmann clause. This was something I had suggested in a meeting which unbeknown to me actually got into the regulations. It meant that if someone on benefits didn’t want to accept a payment, they could donate it to a charity of their choice.
Jeffery Archer
Another time Celia invited us to lunch at the House of Lords dining room. We were celebrating some small victories in increasing the rights of people on benefits and protecting them from accusations of fraud for pretty small amounts of money. Ironically who was dining at the table opposite but Jeffery Archer, onetime tory party chairman and notorious convicted fraudster.
Judy’s Legacy
I was very lucky to have worked with Judy. The work we did together at the House of Lords was a career highlight. She was not someone who suffered fools gladly, so I felt privileged that for reasons only known to Judy I was admitted into the small circle of people she trusted. I miss Judy personally and professionally. There really is no one else like her. She took a very complex issue that most people thought was impossible to solve. Against the odds Judy made a real difference and had a huge positive impact on many people’s lives.